People With Disabilities @ MindSay

Don't ever let it be said that we are alone in this world. I mean, no matter what scenario you find yourself in there is always someone there for you. And there is always a simple way that you can help others.

The of dawn of the Internet Age has helped this in many ways. We have blogs and forums and groups all over the world to reach out and help each other.

Myself, I turned my many blogs and profiles into a place where I can inform people of my situation involving life with birth defects. Here on Mindsay I have met and become friends with many great people who also have disabilities. Those friends and I have started to help and support each other out.

Over on Yahoo I found a group for people with my particular disability (Poland's Syndrome). I didn't like how that group was being run so I started my own (there is a link to it in my bookmark section). People have joined and we are there for each other.

Over on my MySpace profile I decided about a month ago to mention PS in a few sentences of my About Me. Amazingly, I have already gotten two messages form people about PS. One was from a man who has it and the other from a mother who's daughter has it. I wasn't expecting those but they are cool.

Somehow, I have found a way to find other people like me in a way I didn't expect. I don't know for certain but I kind of like to think that it's helping them just as much as it's helped me. It has showed me that this world isn't as sad and desperate as it may seem. It proved to that people will always help you as long as you search for the help you need. And as long as we are helping others along the way it's gona work out, I think.

Thanks,

Mark

 I have been on Mindsay for just over two years. I don't even remeber why I started this blog (well actually this is my third reincarnation on Mindsay, I was first whoismsm  and then I was this name but I spelled orange wrong so I deleted it).

one of the thing this blog and my wikipage have become is a place for me to educated others on many of the misconceptions on handicaped, disabled, and defromed persons. I have a birth defect and it has made my life hard at time. I have been lucky that it has not cost me friends, jobs, etc. I do know and know of people hwere their disabilities have cost them so much. For this reason one on my causes in life is to help those with disabilities any way that I can.

I have place many links iwth information about my Syndrome all over my page. and I jhave gotten mostly generous and supportive outcomes.

I had no intention of useing this blog in that way but I now am glad that I am helping those I have always wanted to.

Recently I have made a new Mindsay friend, Tallyho . She has MS. we have had an ongoing discussion of life with a disability. She has a much bigger burden then I do. I am so glad she reached out to me.

Tally, mentioned how she is sometimes not thought of as having MS. She shared with me the example of people getting mad at her for parking in a handicapped spot, even though she physically appears not to be handicapped.

I wish people would not judge in that way. I myself live almost everyday with back pain that no one would know by looking at me.

Just because a person doesn't appear to be handicapped or disabled doesn't that is the case. I personally am not handicapped but do have a disability.

give people the help they need. that help may be just being patient and not judging. that could make the world to them.
I have a hard time lifting a carrying thing because my left hand is deformed. I am not asking for a medel of honor Ijust ask that people understand and be patient.

Tally, I'm sure agrees.    

Any way I'm rambling. My point is when you are fac to face with someone they may or may not be a person with a handicapp. If they are the best way to help in alot a cases is to look upon them with patience, understanding  and not to judge.

Thanks for Reading,

Mark M.

I've been writing a lot lately about things that are bugging me, or that I've thought or wondered about. And what I saw on Friday, brings me to strike again.

At my school, we have many students that have some kind of disability, and most of them are in my lunch. They're people just like us--they have feelings/emotins, personalities, and they can do just as much as we can if you give them time--they're just people with something that makes them different, and very special.

Well Friday, at the table behind where my friend and I were sitting (at lunch), there were some guys and girls that were laughing at and making fun of the disabled students, also in our lunch. It bugs the hell outta me!!! I should've known though--it was popular peopld doing it. That still doesn't give them the right to do that though!! I don't care who you are--it's not right to do that, because they're just like us--except with something that makes them physically or mentally different!!

I've grown up around disabled people (mostly downs syndrome), though so maybe that's why it bothers me so much when people make fun of them, and I don't like to see it happening. I'm used to them, and how they act in certain situations...and a lot of people aren't used to them---still, none of that is an excuse to do it though!!! Honestly, I think people with any kind of disability are the sweetest, most caring, and lovable people in the entire world! I don't understand why some can't even give them a fucking chance--maybe it's because they're so coldhearted and judgemental that they won't give any person a chance if they're not like them. And that pisses me off.

Honestly, if people think it makes them look "cool" or will make them more "popular" if they degrade the disabled (or anyone for that matter), they're outta their damn minds!! If anything--it makes them look stupid and very judgemental!

It hurts me when it happens, because the disabled people aren't bad at all!! I have a friend who has downs syndrome, and she's 46 but has the mentality of an 8 or 9 year old. She's the sweetest person I know, and every time I go over to their cabin, she always comes running over as soon as I enter the door, and gives me a big hug. It brings a smile to my face, and she makes me feel like I'm a very special person in her life...she's one of 'em in mine!

And we have another family friend named Scot, who's 11 years old, and he also has downs (so he has the mentality of a 4/5 year old). We don't go over there often, but whenever we do--he's the first person at the door, gives us all a hug, and is the first little one to sit on my lap for hours. When we were over there this fall, we were all by the bonfire, and I wasn't feeling the greatest because I had an extremly bad ear infection and the pills they gave me weren't working so we had to get new ones and they hadn't kicked in yet, but he sat on my lap the whole time. It was so cute. And then he told my dad that he's going to marry me...hehe that's so cute!!

It just makes me hurt when people can be so cruel to others when they view themselves as "better or higher than them," when really--they're not at all!

Okay, my ranting is done for the day--I've sure done a lot....3 new posts in one day...amazing.

<3 Nicole