The latest update is very encouraging, after yesterdays downer. you can kind of tell when the parents are feeling very discouraged. I still can't imagine being in their shoes. We are going tomorrow to see Crystal and family. My Joey (born on the same day as Crystal and her twin Charity) really wants to see her, so we will take him to look in the window at her. My husband is going as well, because we know that it will be tramatic, but, it seems to be important to him. We want to be ready for any reaction that he has. I have to admit that I am curious about the Berlin heart, which is an external heart device.
My mom is starting to crack under the stress of this situation. 34 years ago on Dec 18, my mom gave birth to a little boy with the same heart defect that Crystal was born with. That long ago, it was undetected until he died at 1 week old. He died on Christmas day. Its' starting to get too too close to Christmas for her, and she said tonight that she doesn't think she could take it if they manage to keep Crystal alive, only to have her die on Christmas too.
