Chris and I got to hold Aiden saturday. He's feels so much smaller than he looks. The nurse I spoke to on the phone was optimistic that he will continue to thrive but it's hard to not think about every little thing that can go wrong. He still has what they call "spells" basically it's apnea, where he falls asleep so deeply that he ends up not breathing and his heart rate drops. Most of the time he "self corrects' the problem other times the nurse just has to rub his back and stimulate him. He also has been having tummy trouble. He was eating 2.5cc's ( half a tsp) of breast milk every 6 hours, then they upped his feeding to every 3 hours, all of a sudden his belly was distended and they were getting brown residual from his feeding ( that's when they clear out his throat, tummy and feeding line of anything he didn't use during the feeding). They took x-rays of his stomach and everything was fine. They held his feedings for a few days and started him back today at 2 cc's every 6 hours again. They also put him on antibiotics cuz his PICC line looked red and swollen, so they put in a regular IV.

 

They tell me that this is all very normal and he's doing amazingly well, for his age and that he will eventually grow out of everything that scares me.

 

Other than that, I am being reassured, by many a medical professional, that nothing I could have done (physically) short of beating myself in the stomach or falling flat on my belly could have caused my water to break, most people I ask are as sure as I am that it was caused by a freak,"almost" accident that I wasn't in. Some girl almost hit me (driver's side, almost t-boned my car) making a left out of a drive, while I was making a left of the main road into the parking lot she was coming out of. SCARED THE SHIT OUT OF ME. I had to stop for quite a while just to calm down and stop shaking.

  ---- but if this was the start of my 'episode' the lack of amniotic fluid could have aggravated the placenta, and I already had problems with that starting from when I was only 8 weeks pregnant with my first hemorrhage.

   Still it's easy to blame myself, I know others do. Everyone needs someone to blame when something goes wrong.

 

Anyway, it's still the most overwhelming experience I've ever been though. It's harder than when my dad died, it's harder than being in an abusive relationship, hell it's harder than leaving that relationship.

 

The amount of paperwork I have to endure, the pumping breast milk every 2-3 hours ( which I found out keeps Aiden from from having intestinal problems that cause death in preemies due to formula being to harsh for their bellies) not to mention keeping up with my other 2 kids, their appointments, school etc., is absolutely causing me to melt down. I can't even get more than 4-5 hours sleep, because I'm not supposed to wait longer than that to pump again or my milk supply might dwindle. Oh I didn't mention that after I use the breast pump that I have to clean and wash every little part BY HAND- no sponge or brush, because I can't have any contamination or bacteria compromising the food supply for Aiden.

 

Don't get me wrong, I'm not looking for sympathy, and God only knows not too many people could understand enough to have any empathy. I'm just venting I guess. I can't work, I can't go out and every move I make is based on getting back home to use a breast pump. (by the way it takes 10 minutes to get it ready, and hands washed, 20 minutes to pump and 10 -15 minutes to wash and log in my times and labels-- that's 40 minutes every 2 hours) It just doesn't leave much time for everything else, and everything else is important too.

 

I know life won't be like this forever, but right now, it's almost to tough to get through even though I'm doing it.

 

On a lighter note the swelling in my legs and feet, that I have had for 2 weeks now, has gone down a little and I can almost walk straight, even though my feet hurt so bad it feels like open skin wounds.

 

 

Enough for now.

 
   

 


 
 
k10 on
Re: So far so good
after all the help you've given your mother...is she helping with the kids at all?
Andieland on
Re: So far so good
she watches them sometimes, when we go to the hospital, but we have to drive them over to her house ( my mom lives 9 miles south of my house and the hospital is 5 miles north of my houseso from her house to the hospital 14-15 miles one way), she doesn't come by here and when we do ask or invite her over she makes an excuse ( like her head hurts or back or something) Chris's mom just got back from her vacation, so I'm sure she will help when she can, but she works til 6pm six days a week.
k10 on
Re: So far so good
oh...i really wish i lived closer.  i'd love to help!
Andieland on
Re: So far so good
and I would definitely love you to
be42677 on
Re: So far so good
Wow!  Your little man sounds like a trooper!  Sounds like although it's tough going now - everyone seems very confident about a very good outcome and I'm very happy for that!

Hey - in terms of the pump, can you buy additional attachments so that while you are pumping with one set, the other can be in the dishwasher getting sanitized?  Just a thought...thanks for the update!
Andieland on
Re: So far so good
I wish, I don't have a dishwasher. I'm not sure about the extra pieces but that would be a lovely idea.

  He is a tough little guy, born without a heartbeat and holding his own 3 months too soon. He's having a hard time eating, but thats not his fault he's not supposed to be eating yet.

wonderingsoul on
Re: So far so good
I'm so glad that Aiden is doing so well!  It sounds like what you're going through right now is time consuming and that's gotta be really frustrating.  I like what be42677 suggested about having a spare set of attachments for the pump.  I used to work at a pharmacy and one of the pharmacists had to pump, so she'd go in a back room and do it when it was time, but I never realized what went into it....with all the cleaning and sterilizing each time.  I never saw her do any of that, but I suppose she wouldn't have done that in the open either.  If you had a spare set of attachments, it might also allow you a little more freedom to be able to go somewhere.  Just keep on keepin on and don't forget that Chris is there to shoulder some of this - he's a daddy now and he is gonna have to step up to help out.
Andieland on
Re: So far so good
yeah, he quit helping me about 2 days after I got home , I got home on friday and on sunday, I was up doing laundry

wonderingsoul on
Re: So far so good
*reaches through the computer and smacks him*
Andieland on
Re: So far so good
thanks, he needs it
angelfolife2006 on
Re: So far so good
Just thought I would let you know. I will keep you in my prayers.  I'm sorry that things are so hard right now but you are very lucky.  I'm glad that aiden is doing ok and I hope only for the best for the both of you!
Andieland on
Re: So far so good
Yes, I do believe I am lucky, thank you for your time and thoughts, I appreciate it so much

 
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